Invisible: Poems from a life with ME/CFS

Ever wondered what it feels like to have me/cfs?
Or do you suffer from it, and wish you could explain it more to yourself and those around you?
This powerful and moving collection of poetry may help.

It documents Lynn's life as someone who became 'invisible' to the world. Her thoughts, emotions, wit and experiences tell of a 20-year journey towards the hope of recovery through highs and lows, despair and discovery, and ultimately adjustments to expectation and self.

Lynn has always been a creator, an achiever and a highly motivated individual - not one to lie down without a fight (a common trait amongst ME sufferers). She spent many years touring the world as a professional musician and songwriter but, thanks to ME, was forced to give up her life on the road for a life in her bed. The lack of achievement through illness was a huge frustration, but a lifelong passion for writing poetry came to her rescue as a channel she could tap into with what little energy she had to keep the show on the road.

The hope is that sharing these poems will help ME/CFS (and now Long Covid) sufferers to reach out to friends, family, colleagues, medical professionals, researchers and the wider world, to help them to understand what it is like and to explain, in part, why someone so close has disappeared from their lives - not because they want to but because they do not have the energy or strength to be there.

There is also a hope that other sufferers of long term illness may find comfort and solace in this collection, in knowing they are not alone, and that amongst it all there can be joy, humour, hope and positivity.